OASIS Symposium- Holistic Care Hirschsprungs Disease: Patient centered are in Hirschsprung Disease (HSCR) and Total Colonic Aganglionosis (TCA)- Optimizing the pathway of care- including pre and postoperative care

27.7-29.7.2023 Rostock Warnemünde

We kindly invite you to our Summer Symposium on Holistic Care in Hirschsprungs Disease.

We are honoured to organise the first Paneuropean Scientifique Symposium on holistic care for Hirschsprung Disease and Total Colonic Agangliosis. This Collaboration grew between clinicians and patient associations from Poland, UK, Italy, Netherlands, Austria and Germany and will take place in Warnemünde organised by the Rostock Colorectal Center. Hirschsprung Disease (HSCR) is a rare disease affecting the capability to pass stool and results in obstruction of the bowel and affects approximately 1:5000 liveborn babies and its most severe form, Total Colonic Aganglionosis (TCA), affecting 2-5 % of all children with HSCR.

Clinicians, researchers and patient (representatives) will discuss how best enable holistic care with patients concern in the middle of the clinical support oriented and adapted to current scientifique knowledge.
Which model of care exist and how can a european network support clinical care.    

1 Patients and Family needs before and after surgery

2 Patient support groups for Hirschsprung’s in Europe- ideas for cross collaboration

3 Optimal bowel management

4 Surgical Strategies in Hirschsprungs and Total Colonic Aganglionosis

5 Quality of Life Aspects, Longitudinal follow up

6 Transition

The Symposium will be open to everyone. We would love to involve clinicians (doctors and allied health professionals), scientist, patient associations to come together to share clinical experience and discuss together how to enable best care for this patient group and their families.

Please register here: https://forms.gle/CdHppxTobEY9ShiXA

Early bird fees before 15.6.23

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This Networking event has received funding from: